Showing posts with label Loss. Show all posts
Showing posts with label Loss. Show all posts

Tuesday, September 6, 2016

All The People Who Died



I always forget that one grief is tied to all the others. That one loss revives all the others. That—at least for me—someone else's loss, someone else's pain can reactivate my own.


I experienced my first loss at age four. My father died. His name was Harry. When I was a little older I found out he had taken his own life.

Then three years later, my grandfather died. His name was also Harry. I called him Papa. His second heart attack killed him.

My mother and I moved back and forth through different countries, and the losses kept piling up: Loss of home, of family, of friends, of community, of schools, and even of landscapes.

My family—a dual lineage of stalwart survivors—handled loss with a combination of denial and a stiff upper lip, and therefore, so did I.

We didn't know any better.

More people died. My great-grandmother. I called her Gran Gran.

My three remaining grandparents. Bobba, Zaider, and Marzie.

And, they have kept on dying to this day. 

My two aunts. Beebee and Pam.

My Cousin Al.

And, more beloveds: Beloved friends, beloved colleagues, beloved mentors. Grant, Jody, and more.

And just a week ago, an 18-year old boy I had never met took his own life. His parents are friends of my dearest friend. Their kids were at school together, played together, grew up together. 

I have never met his parents. But my friend's grief, the boy's family's grief, the children's grief, the community's grief, the fact that like my father, the boy took his own life, all of that made a beeline for my heart and ripped it to shreds all over again.

It has taken decades, but over the past few years I have learned that the only way to handle grief is to face it, to name it, to let it live in you, to let it hijack you, to surrender to it. 

The practice does not come naturally to me. It explains why I am so surprised and resentful each time I am overcome with a sadness so acute and painful it stops me in my tracks.

I leave you with the song that says it all for me: Jim Carroll's "People Who Died." Everything about it, the raw, punk sound, the lyrics, the absurdity, it all speaks to me like nothing else.

I chose this version from YouTube as it showcases Carroll's lyrics. 






Monday, April 25, 2016

Thank You, Jody

This post is in response to the recent announcement that Jody Schoger, co-founder of the #BCSM Chat and Community, has entered home hospice as her treatment is no longer effective. Jody has metastatic breast cancer.

I posted this on Facebook but want it to live here on my blog as well.

*  *  *  

Dear Jody,

The impact you have had on my life is profound and far-reaching, all the more so because you were always "just" being you, doing what you do.

Jody, you're The Person who quickly "saw" me, reached out and welcomed me to the wild wild world of Twitter in late 2010/early 2011.

You encouraged, mentored, and supported me in so many different ways.

Here's one of the most important: I don't know if you know this, but you are one of the advocates who set the example and inspired me to cease posting anonymously and take the terrifying step of being Out to the world at large as a person who has had cancer. And this was at a time when I was so extremely vulnerable and fragile in body, mind and spirit, just months after finishing treatment and surgeries for my 3rd cancer.

You are responsible for helping me somehow make it through that terrible day I experienced at the first breast cancer conference I naively attended: C4YW, February 2011: I didn't understand that attending a conference could trigger me, because I didn't understand that I had PTSD from Medical Trauma. Your DMs (direct messages) with me that day were a precursor to what we came to fondly call the #BCSM batsignal.

A few months later, you encouraged me to apply to Stanford Medcine X, we were both accepted, and you offered to be hotel roomies. The first time we spoke on the phone (to make those arrangements) we joked about hopefully not being axe murderers :-)

This photo of you is from that hotel room, after we had finally met in person. I will never forget how much FUN we had, feasting on delicacies we picked up at the nearby Trader Joe's, and goofing off by speaking in French accents.


I feel like I captured your sense of humor, joie de vivre and playfulness in this shot. Such a necessary contrast and corollary to the seriousness of our purpose.


The other photo symbolizes, to me, the profound impact you have had on the world beyond Breast Cancer. 

You, Hugo Campos and myself at that first Stanford Medcine X (technically, it was Med2), members of that group of founding ‪#‎ePatients‬ who, thanks to Larry Chu's invitation and challenge, came together to co-create and participate in an academic medical conference as equal stakeholders.


Jody, know that I carry you with me always.

Thank you for lighting the path and showing me the way

All my love and gratitude,

Liza
Update, Wednesday, May 18, 2016: I woke up to the news that Jody died this morning. Please read this beautiful tribute to her by #BCSM's co-founder, Alicia Staley: "Good Night, Jody."

Friday, March 8, 2013

Farewell, Beautiful Soul

The lengthy excerpt below from today's New Old Age blog in the New York Times speaks to what one of my dearest friends is experiencing right now.

Around three years ago, her dearest friend (I will call her Beautiful Soul for privacy reasons) was diagnosed with Stage IV Breast Cancer, and began Hospice Care at home at the end of 2012. Beautiful Soul left us two nights ago, and my dear friend is in the throes of that loss.

My friend and Beautiful Soul created a very special world in preparation for Beautiful Soul's passing, and I know for sure that as this blogger says below, there was "a sense of ceremony and intimacy, suffused with honor" when it happened.

View of the Pacific at La Piedra
At La Piedra, by Liza Bernstein
I hope my dear friend, somewhere down the line, after the tsunami of extreme grief has ebbed, flowed, and receded again, will find that sense of peace and acceptance, despite the unbearable pain of loss.

Knowing her, she will. But at what cost?

Again, Advanced Breast Cancer, Metastatic Breast Cancer, Stage IV Breast Cancer -- there is no cure, it is the cancer that kills and takes our loved ones from us. It takes them young, it takes them old. It doesn't discriminate. And yes, we may experience and learn important life lessons and wisdom and growth and so forth when we are there with them side by side.... but I'm feeling selfish. I don't want any more of these life lessons, I am enraged that my dear friend (and all others like her) has to experience this unspeakable suffering of the heart and soul.

I send her and all like her my deepest love and comfort.

May Beautiful Soul rest in peace.


Here's the excerpt:

After Caregiving, Comfort in Having Helped
By JUDITH GRAHAM
On the day of her death, Mom’s grandchildren came in, one by one, to bid her farewell. My brother, sister and I held her hand. I had a sense of ceremony and intimacy, suffused with honor. The honor came from acknowledging Mom’s long, hard journey, and from facing things squarely, encountering what it means to be human, in extremity.
A year later, on the anniversary of her death, I stood on a bridge crossing the Chicago River and had an extraordinary sense of time both collapsing and stretching into infinity all at once. It was a warm, sunny day, the water gleamed bright below and I felt Mom with me, amid all the beauty. 
In the end, I was not left with the loss I had dreaded so much. What I felt was a sense of fullness, uncolored by fear. 
I tell you this because during years of struggle, this may not seem possible, this sense of knowing you stood your ground with love and honor, this deep acceptance of all you did and left undone. But it is, and knowing this is one of the insights that followed my years of caregiving, which informs all the work I do here.