July-August 2023 update: Liza is in the process of creating a website about her Book, Story, and Idea Coaching Services. She just started a Substack — check it out here!
Patient Advocate, Facilitator, Writer, Speaker, Organizer, Interdisciplinary Artist & Innovation Consultant Devoted to Connection and Repair.
Liza Bernstein (she/they), a Third Culture Kid who is NED (No Evidence of Disease) after three cancers is a patient advocate, interdisciplinary artist, and innovation consultant devoted to connection and repair.
Liza's advocacy serves a global audience via social media, conference attendance, live-tweeting, speaking and media engagements, peer mentoring, and relationship-building. She also collaborates, co-designs, and advises across the multi-stakeholder healthcare spectrum to break down silos, foster understanding, promote education and empowerment, and accelerate change.
First speaking engagement: Project Angel Food 20th Anniversary Gala Fundraiser, 2009 |
In late 2010, Liza began to explore the worlds of breast cancer and healthcare innovation on Twitter and never looked back.
Her work at the intersection of healthcare innovation, technology, and human-centered design has made impact at groundbreaking companies including Cure Forward, Science 37, CanSurround, Symplur, Medidata, Omicure, and BioNews; and at organizations including Stanford Medicine X, A Fresh Chapter, and the Tigerlily Foundation. Liza's background in human-centered design includes projects with RGA/LA, IDEO, Bruce Mau, and Medicine X Design Studios.
NCCS's tweet re 2020 Healthline article. |
Liza, who is also an interdisciplinary artist (writing, Capoeira Angola, ceramics), is a TCK (Third Culture Kid) who grew up in South Africa, France, and the US. She is passionate about connecting and collaborating across vastly differing cultures and digs deep into her life experience and expansive creative training to do whatever it takes to facilitate understanding and communication—she’s no stranger to improv, which has the added benefit of yielding lots of laughs.
Recently, Liza executive produced, directed, and hosted A Window Into Rare, Rare Disease Day Panel Discussion at BioNews, where she was the Senior Director of Patient and Community Engagement. And, she delivered a talk on Innovation in Surgery from the Patient Point of View for the Inworks Innovation Initiative, University of Colorado Anschutz Medical Campus.
Areas of Interest Include:
Areas of Interest Include:
- Art and Illness/Disability/Medical Humanities
- Equity, Anti-Racism, Disability Justice, Community Building
- Emotional Side Effects of Cancer and Illness/Medical Trauma/PTSD
- Neurodivergence
- Mentoring/Empowerment
- Cancer/Breast Cancer/Metastatic Breast Cancer
Links To Some Of Liza's Work:
- The Health Design Podcast, 2022, Interviewed: Liza Bernstein, Patient Advocate
- BioNews, 2022:
- Executive Producer, Director, & Host: A Window Into Rare, Rare Disease Day Panel Discussion
- Omicure Blog, 2021:
- Beyond DNA — Studying RNA to Understand Treatment Resistance and Prescribe Truly Personalized Cancer Therapies
- Cases Studies from Winther
- RNA Sequencing of Cancer Biopsy Specimens: new research demonstrates robustness for use in a clinical decision-making setting
- RNA-Sequencing Assists Immunotherapy Decision Strategies for Patients with Metastatic Bladder Cancer
- Medidata Blog, 2020 Featured: Patient Centricity by Design: How Medidata Infuses Patient Voices into the Software Development Life Cycle
- Cancer Today Magazine, 2020, Author, Personal Essay: On Cancer and Identity
- Months to Years Magazine, Fall 2020, Poem: Line of Demarcation
- SCOPE Summit, Orlando FL, 2020, Panelist: Patient Centricity By Design: Clinical Trial Solutions Designed By Patients For Patients
- Healthline, 2020, Interviewed: The Emotional Trauma Felt by Shannen Doherty and Others When Their Cancer Returns
- Symplur Blog, 2019 (IMPORTANT: As of January 2023, if you click to read any of these posts, they no longer show that I authored them. The company has replaced my author name and author bio with the generic "Symplur." Luckily I have screenshots of the originals. The ASCO story was co-authored with Audun Utengen.)
- Healthcare Twitter Polls: Unscientific? Or, Powerful Tool for Knowledge Transfer?
- Tweetorials — From Early Beginnings to Huge Growth and Beyond
- Rescuing Scientific Posters from the Twitter Black Hole
- Doctors Up, Patient Advocates Down: Diverging ASCO Twitter Engagement
- Begging to Work for Free: Patient Advocates Speak Up
- COPD, “Our Biggest Challenge” — Grace Anne Dorney Koppel and Ted Koppel, Social Media, and Innovation
- Cancer Today Magazine, 2019, Featured: The Right Dose
- MD&M West, Anaheim, CA, 2019: Stuart Karten Design Workshop: Creative Velocity
Phase One Foundation, 2018: Social Media and Cancer Care: Noisy Chatter or Meaningful Discourse? |
- Phase One Foundation Speaker Series, Los Angeles, CA, 2018: Social Media and Cancer Care: Noisy Chatter or Meaningful Discourse?
- Journal of Medical Internet Research, Vol 19, No 8 (2017): Patient Participation at Health Care Conferences: Engaged Patients Increase Information Flow, Expand Propagation, and Deepen Engagement in the Conversation of Tweets Compared to Physicians or Researchers
- Stanford University School Of Medicine, 2017, Guest Lecturer: Precision Medicine Needs Precision Kindness
- Cancer Research Catalyst, 2017, Quoted: AACR, Expanding its Community Outreach
- Society for Clinical Research Sites, Webinar Co-Presenter, 2017: Collaboration is Key: ePatients & Clinical Research
- Stanford Medicine/Scope Blog, 2017, Featured: Grief In The Time Of Social Media
Stanford Medicine X, 2017: Death and Bereavement in the Digital Age |
- Stanford Medicine X, 2017, Abstract Author and Panel Moderator (video): Death and Bereavement in the Digital Age
- Stanford Medicine X, 2017, Interviewed (video): Engaging Patients as Partners in Research
- Lilly's Hero's Journey Art Project, 2017, Featured (video): Patient Advocate Liza Bernstein Reflects on the Hero's Journey™ Art
- Inspire, 2017, Interviewed: Fighting Words: How We Talk About Cancer
- STAT News/Business Insider, 2017, Interviewed: McCain Was A Warrior. But Is That the Right Metaphor For His Struggle With Cancer?
- AACR, 2017, Poster: Social Media Is Real Life
- Fred Hutch News, 2016, Featured: Cancer, Bankruptcy and Death: Study Finds A Link
- Los Angeles Times, 2015, Featured: A Second Opinion Could Save Your Life
- Stanford Medicine X, 2015: Abstract Author and Panel Moderator: CanSurround: Co-Creating With ePatients At The Intersection of Cancer Mental Health And Technology
- Doctors 2.0 & You, 2015: CanSurround Wins 2015 Startup Contest
- Virtual Strategy, 2015: Delaware-Based Digital Health Company Wins 2015 Startup Contest
- Doctors 2.0 & You, 2015 Panelist: Social Media And Patient Advocacy
Stanford Medicine X, 2015: Los Angeles Pop Up Event |
- Stanford Medicine X, 2015: Medicine X Pops Up In Los Angeles
- Stanford Medicine X, 2014, Panelist: Medicine X IDEO Design Challenge, 2014
- Stanford Medicine X, 2014, Panelist: The Missing Link? Mental Health As A Turning Point For Whole Person Health
- Stanford Medicine/Scope Blog, 2014, Quoted: Stanford Medicine X, From An Annual Meeting To A Global Movement
- Stanford Medicine/Scope Blog, 2014, Quoted: Stanford Medicine X Explores The Relationship Between Mental and Physical Health
- Stanford Medicine/Scope Blog, 2014, Quoted: What Makes A Good Doctor And Can Data Help Us Find One?
- Stanford Medicine X Live! 2014, Curator and Moderator (video): Design And The Patient Experience
- Stanford University School Of Medicine, 2014, Guest Lecturer and Panel Moderator (video): Design Thinking For Patient Engagement
- Stanford Medicine X Live! 2014, Curator and Moderator (video): Wellness And Self Care At Medicine X
- Stanford Medicine X Live! 2014, Panelist (video): ePatient Leadership: Mentoring Others
- The Health Care Blog, 2014, Quoted: In Praise Of Lisa Boncheck Adams, Breast Cancer Expert
- Stanford Medicine X Live! 2013, Panelist (video): The 2014 ePatient Program
- Sirius XM Doctor Radio, 2013, Guest Speaker: The Emotional Side Effects Of Cancer
Stanford Medicine X, 2013: Dignity, an Ignite Talk |
- Stanford Medicine X, 2013, Speaker (video): Dignity, ePatient Scholar Ignite Talk
- Stanford Medicine X, 2013, Abstract Co-Author And Panel Moderator (video): Creating Patient-Physician Synergy With Social Media
- Doctors 2.0 & You, 2013: Interviewed
- Stanford Medicine/Scope Blog, 2012, Profiled: A Three Time Cancer Survivor Shares Her Perspective On Peer-To-Peer Healthcare
- Stanford Medicine X, 2012, Interview (video): A Conversation With Liza Bernstein
- Stanford Medicine X, Films, 2012, Profiled (video): Liza Bernstein, Stanford Medicine X ePatient Scholar